Ehlers-Danlos Syndrome fight continues for these families

Rhode Island resident Ellen Lenox Smith is brave. She has undergone 26 surgeries, had nine catatonic episodes in which she couldn’t walk, talk or respond to her husband, and spent four years in a wheelchair.

The 71-year-old taught herself how to walk again, how to talk again, how to live again.

No matter how difficult her life’s circumstances have been, she has always found her way back, and now she uses that strength to help those around her. Read More

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