Hooray for Hugo! Red-themed fundraiser for rare condition

St Albans schoolchildren were seeing red as part of a special fundraising day for a rare genetic condition.

Pupils from Skyswood Primary School in went to town with plenty of red-themed fun to support the national Reds 4 VEDS
campaign and raise funds for Annabelle’s Challenge, the UK’s leading charity for vascular Ehlers-Danlos Syndrome (VEDS), a rare life-limiting genetic disorder.

The school was inspired to support the appeal as one of their reception children, five-year-old Hugo Manku, has an official diagnosis of VEDS.

The children conquered a Reds 4 VEDS obstacle course, held a Really Red Raffle and a sold red cakes in their individual class bubbles.

VEDS is a rare condition that affects the veins and internal organs. Around 300 people in the UK have an official diagnosis, although the true figure may well be double this amount.

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