“I am never not in some type of pain.” What it’s really like living with Ehlers-Danlos syndrome

I live with chronic pain. I live with the heritable Connective Tissue Disorder, Ehlers-Danlos Syndrome, or EDS for short.

I had quite the diagnostic odyssey to get to this point – the point of knowing what the heck is and has been wrong with me my entire life. It took 17 years from the ramping up of my symptoms around puberty to get here. Read More

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